Update on Sophia - Prayers still needed!

Sophia's aunt sent the following late Tuesday night.

Today was a hard day. Veronica and Scott met with the endocrinologist and found out the kind of life long treatment she’ll need to do the job of the pituitary gland that has to do with the kidneys. That was overwhelming especially for Veronica. The physical therapist worked with Sophia twice today (tried to get her to sit and to stand for a few seconds), and the speech therapist also worked with her. Sophia was restless all night and all day today. I hope I haven misled you by saying that everything has gone great. It has in the sense that the tumor is gone and the surgeries went incredibly well. But that doesn’t mean that we have our old Sophia back yet. She’s still in Pediatrics Intensive Care, we don’t know how much longer she’ll be there. She’s not awake and alert. When she wakes up she has one eye barely opened and the other closed (the left eye was the one more affected). She mumbles words, sometimes she seems to recognize and say a few things that make sense but most of the time she mumbles things that we don’t really understand or that don’t make sense, she imagines things and tries to touch things that are not there. It breaks your heart to watch her. It’s also taking a toll on Veronica, she’s very stressed and worried. The doctors say this “delusional” state is normal, but everyone is different so we just need to wait, they can not say when she’ll come out of it. Since it’s the vision and the functioning of the brain that we need to “wait and see” you can imagine how hard this waiting is. On the other hand, she had times today when she had things to eat and drink, I asked her if she wanted me to read her a book and she said yes, I told her that our lamb had babies last night and she responded “really?”, so those are all great things. Many of you have asked about visiting, so I asked Veronica today. She said that it’ll probably be best to wait a bit, until things get a little better and they are out of intensive care. Right now they are really limiting the people that go into the unit, so you wouldn’t be able to see Sophia, and many times is hard for them to leave her to go meet visitors in the waiting room. You know how much they appreciate all of your care and concern, and you know how much they have depended on your loving prayers, but right now it’s still very stressful there. I’ll be happy to print emails to bring to the hospital for now and I’ll make sure I let you know when it’s okay to go. Please continue praying for Sophia, her doctors and nurses, for Veronica, Scott and Matias. Thank you. God bless each and every one of you, Daniela